What Information Should Be Included in a Dysphagia Referral?

A useful dysphagia referral explains what has changed, what has been observed and how the concern is affecting the person’s eating, drinking, health or daily life.

Include the person’s details, the reason for referral, relevant health information, current mealtime recommendations, communication needs, consent arrangements and the best people to contact.

Describe what was seen or reported rather than trying to diagnose the problem. Clear, specific information helps the speech pathologist understand the concern, determine the next step and prepare for the assessment.

What is a dysphagia referral?

Dysphagia means difficulty swallowing. A dysphagia referral is a request for a speech pathologist to assess or review a person’s swallowing and mealtime needs.

A referral may be made because:

  • new swallowing signs have been observed

  • the person’s health or function has changed

  • an existing plan is no longer clear or practical

  • the person is having difficulty with certain food or drinks

  • meals are becoming longer or more tiring

  • food or fluid intake has reduced

  • current recommendations need review

  • carers or staff require clearer mealtime guidance

  • the person has returned home after hospitalisation

  • an updated mealtime management plan is required

A referral does not need to contain a diagnosis of dysphagia. It needs to explain the concern clearly enough for the service to determine an appropriate response.

Start with the person’s identifying details

Include accurate and current information such as:

  • full name

  • date of birth

  • address

  • telephone number

  • email address, where appropriate

  • preferred language

  • communication needs

  • relevant service or participant number, if required

  • current living arrangement

  • main contact person

  • relationship or role of the main contact

  • details of the person authorised to make or support relevant decisions, where applicable

Check that names, telephone numbers and email addresses are correct. Missing or incorrect contact information can delay the referral.

Explain the reason for referral

State the main concern near the beginning of the referral.

For example:

  • “Coughing a lot when drinking since returning from hospital.”

  • “Meals now take more than an hour and the person becomes increasingly fatigued.”

  • “Current mealtime management plan is outdated and does not reflect the person’s present support needs.”

  • “Staff have observed food remaining in the person’s mouth after meals.”

  • “The person reports that food feels stuck when swallowing.”

  • “Repeated refusal of the prescribed texture-modified meals.”

  • “Review requested following a recent stroke.”

  • “Support team requires clear recommendations for eating and drinking in the community.”

Avoid referrals that only say “swallowing assessment required” or “possible dysphagia”. Explain why the assessment is being requested.

Describe observations rather than conclusions

Report what was seen, heard or communicated.

Relevant observations may include:

  • coughing during or after eating and drinking

  • choking episodes

  • throat-clearing during meals

  • a wet, gurgly or changed voice

  • difficulty starting a swallow

  • food remaining in the mouth

  • difficulty chewing

  • food or drink spilling from the mouth

  • pain when swallowing

  • food feeling stuck

  • difficulty managing saliva

  • breathlessness or distress during meals

  • meals taking longer than usual

  • increased fatigue while eating

  • reduced food or fluid intake

  • refusal of particular foods or drinks

  • new dependence on assistance

  • difficulty taking medication

  • unexplained weight loss

  • dehydration concerns

  • repeated respiratory illness

  • a noticeable change from the person’s usual eating and drinking

These observations may have several possible causes. They do not, by themselves, confirm dysphagia or determine the appropriate food texture or drink thickness.

Include when and where the concern occurs

Context can help identify patterns and determine what should be assessed.

Include:

  • when the concern began

  • whether the change was sudden or gradual

  • how often it occurs

  • whether it is becoming more frequent

  • which food, drinks or medication are involved

  • whether it occurs at the beginning or end of a meal

  • whether it is more noticeable when the person is tired

  • the person’s position when it happens

  • the type of assistance being provided

  • whether it occurs at home, in the community or across settings

  • whether different staff observe the same concern

  • what happened immediately before and after the event

For example, “sometimes coughs with drinks” is less informative than:

“Over the past week, staff have observed coughing after several sips of water at breakfast on four occasions. This appears more frequent when the person is tired.”

Explain what has changed

A comparison with the person’s usual presentation is valuable.

Describe changes in:

  • eating and drinking ability

  • coughing or other swallowing signs

  • alertness

  • breathing

  • strength and mobility

  • posture

  • cognition

  • communication

  • behaviour at meals

  • appetite

  • food and fluid intake

  • weight

  • level of assistance

  • meal duration

  • food or drink preferences

  • ability to follow the existing plan

Include any recent event that may be relevant, such as:

  • stroke or neurological change

  • respiratory illness

  • surgery

  • hospital admission

  • intubation

  • fall or injury

  • significant physical deconditioning

  • dental changes

  • medication changes

  • progression of an existing condition

Do not assume that the event caused dysphagia. Simply provide the information so the speech pathologist can consider it during assessment.

Include relevant health information

Provide relevant diagnoses and health history where authorised and available.

This might include:

  • neurological conditions

  • respiratory conditions

  • head and neck conditions

  • gastrointestinal conditions

  • cognitive impairment

  • developmental disability

  • previous stroke

  • previous swallowing difficulties

  • previous aspiration or choking concerns

  • recent infections

  • dental or oral health concerns

  • allergies

  • nutrition or hydration concerns

  • recent surgery or hospitalisation

Include current medication information when it may be relevant or when requested by the service. A current medication list is more useful than relying on memory.

The purpose is not to send every medical document available. Include information that helps explain the referral and the person’s current circumstances.

Describe what the person currently eats and drinks

State the person’s present food, drink and mealtime arrangements as clearly as possible.

Include:

  • their current food texture

  • their current drink thickness

  • whether IDDSI levels are documented

  • foods or drinks they avoid

  • how medication is currently taken

  • utensils, cups or equipment used

  • positioning

  • assistance or supervision

  • pacing or prompting

  • where meals usually occur

  • who prepares the food and drinks

  • whether the person follows the plan consistently

  • any approved alternatives

If there is no current mealtime management plan, say so clearly. Describe what is currently happening without creating new clinical recommendations yourself.

Attach the current mealtime management plan

Where authorised, attach relevant documents such as:

  • the current mealtime management plan

  • previous speech pathology assessment reports

  • recent hospital discharge summaries

  • relevant medical reports

  • current medication list

  • nutrition or weight records

  • recent dietitian recommendations

  • relevant incident reports

  • food or fluid charts, if available

  • previous instrumental swallowing assessment reports

Check that the documents belong to the correct person and that the current plan is clearly identified.

Do not assume the receiving speech pathologist has access to records held by another hospital, organisation or provider.

Include the person’s communication needs

The speech pathologist needs to know how the person understands information and communicates choices, symptoms and consent.

Include:

  • preferred language

  • whether an interpreter is required

  • how the person communicates

  • whether they use signs, pictures or a communication device

  • how they indicate “yes”, “no”, “stop” or discomfort

  • hearing or vision needs

  • whether extra processing time is required

  • whether a familiar communication partner should attend

  • any strategies that support successful communication

Do not describe someone as “non-verbal” and leave it there. Explain how they communicate.

Include consent and decision-making arrangements

State whether the person knows about and agrees to the referral where applicable.

Also include relevant information about:

  • who can provide consent

  • whether the person requires decision-making support

  • an appointed decision-maker or guardian, where relevant

  • who should be included in discussions

  • who is authorised to receive reports

  • any limits on information sharing

Do not assume that a family member, support worker or service manager can automatically consent or receive clinical information.

Follow the person’s documented arrangements, applicable requirements and organisational procedures.

Explain the person’s goals and preferences

A swallowing assessment should consider more than symptoms.

Include what matters to the person, such as:

  • eating favourite or culturally important foods

  • drinking more comfortably

  • remaining as independent as possible

  • participating in family meals

  • eating at cafés or community activities

  • reducing the length or effort of meals

  • reviewing a texture-modified diet

  • improving the range or appeal of available meals

  • receiving clearer support from staff

  • understanding their swallowing recommendations

If the person disagrees with or dislikes their current recommendations, include this respectfully. Do not simply describe them as refusing or non-compliant.

Describe the current support environment

The assessment and recommendations need to work in the person’s everyday environment.

Include relevant details about:

  • where the person lives

  • who provides mealtime support

  • staff availability

  • kitchen arrangements

  • food preparation responsibilities

  • access to equipment

  • community participation

  • changes between weekday and weekend support

  • involvement of family members

  • day programs, respite or other settings

  • staff training needs

  • practical problems following the existing plan

This information can help the speech pathologist prepare recommendations that are clear and usable.

Indicate urgency clearly

Do not write only “urgent”. Explain why the referral may require prompt attention.

Include:

  • what changed

  • when it changed

  • how quickly it is progressing

  • its effect on food or fluid intake

  • any associated health changes

  • recent medical events

  • whether the current plan can still be followed

  • whether the person is experiencing pain or distress

  • what clinical advice has already been sought

The speech pathology service will consider the information and its own triage process.

A routine referral is not an emergency response.

Seek urgent medical assistance if the person experiences acute breathing difficulty, severe choking or airway obstruction, sudden neurological changes, reduced responsiveness, severe distress or another medical emergency.

State who should receive the outcome

Include the names and contact details of the people or services authorised to receive the assessment outcome.

This may include:

  • the person

  • a family member or informal carer

  • an appointed decision-maker

  • the referring health professional

  • the general practitioner

  • a service manager or coordinator

  • the nursing team

  • a dietitian

  • another relevant provider

Clarify who should arrange the appointment, attend the assessment and coordinate implementation of any recommendations.

What information is most helpful from carers and staff?

Carers and support staff often observe the person across many meals. Their specific observations can be extremely useful.

Helpful information includes:

  • the food or drink involved

  • what staff observed

  • what the person communicated

  • how often it occurs

  • time of day

  • fatigue

  • position

  • assistance provided

  • how long the meal lasted

  • how much the person ate or drank

  • whether the event differed from the person’s usual presentation

  • what happened afterwards

Use objective language.

Instead of writing:

“The person is unsafe when drinking.”

Write:

“The person coughed after several sips of water at lunch on three occasions this week. Staff also noticed a wet-sounding voice after one of these meals.”

Should an EAT-10 score be included?

An EAT-10 result may provide useful supplementary information when the tool has been completed appropriately.

However, it does not replace:

  • a clear description of the concern

  • relevant health information

  • the person’s own report

  • observations from carers or staff

  • a clinical swallowing assessment

Include the date, score and who completed it. Do not treat the result as a diagnosis or use it to independently determine food or drink recommendations.

Dysphagia referral checklist

Before submitting the referral, check that it includes:

  • the person’s identifying and contact details

  • the main reason for referral

  • specific swallowing or mealtime observations

  • when the concern began

  • frequency and context

  • recent health changes or hospital admissions

  • relevant diagnoses

  • current food texture and drink thickness

  • current assistance and supervision

  • communication and interpreter needs

  • consent and decision-making arrangements

  • the person’s goals and preferences

  • relevant documents

  • urgency and the reason for it

  • the best contact for arranging the assessment

  • who is authorised to receive the outcome

Frequently asked questions

Is a doctor’s referral required?

Requirements depend on the speech pathology service, funding pathway and organisation. Contact the service to confirm what is required. Even when a formal medical referral is not required, relevant medical information can still be valuable.

Can a family member make a referral?

A family member may be able to enquire or initiate a referral, depending on the person’s consent, decision-making arrangements, funding and the service’s requirements.

How should urgency be described?

State what changed, when it changed, how it affects the person and any relevant medical events. Give more info than only “urgent”. Emergencies require emergency medical assistance rather than a routine referral.

What if there is no current mealtime management plan?

Say so in the referral. Describe what the person currently eats and drinks, how they are supported and what concerns have been observed. Do not create new swallowing recommendations yourself.

Should the entire medical file be attached?

Usually, a focused selection of current, relevant information is more useful. Include documents that explain the swallowing concern, recent health changes and present recommendations. Ask the service if you are unsure.

What to do next

A clear dysphagia referral can help the speech pathologist understand the person’s needs and prepare for an appropriate assessment.

Swallowing & Dysphagia Support provides swallowing assessments, mealtime management plans and reviews for people experiencing swallowing difficulties.

Contact Swallowing & Dysphagia Support to discuss a referral and confirm the information required for the person’s circumstances.

Important information

This article provides general education. It cannot diagnose dysphagia, determine referral urgency or establish an individual’s food texture, drink thickness, suitability for oral intake, treatment, assistance, supervision or level of risk.

Follow local referral and emergency procedures. Do not change a person’s swallowing recommendations based on this article.

About the author

Written for Swallowing & Dysphagia Support and reviewed by Vanessa Chan, Speech Pathologist.

Sources and further reading

Next
Next

Helping Someone With Dysphagia Eat Away From Home